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#ileostomyawareness Photos & Videos

ileostomyawareness - 3.4k posts

𝔸𝕡𝕡𝕣𝕖𝕔𝕚𝕒𝕥𝕚𝕠𝕟 𝕡𝕠𝕤𝕥 ❤️ Just want to say a massive thank you to all the people who responded to my insta stories so positively about always seeking help from your medical professional. I was a little worried people would take it negatively but I only talked about it as I want everyone to be safe. I will always answer questions and offer advice but your medical team will always know your case better than I do if I’ve never looked after you before. But please be aware that someone who isn’t medically trained offers your advice please remember what works for them won’t necessarily work for you. That being said this community is amazing and supportive but please please please stay safe ❤️ #crohnsdisease #crohnswarrior #crohnsawareness #crohnsgirl #ulcerativecolitis #crohnsandcolitisuk #inflammatoryboweldisease #ibd #stoma #stomasquad #ileostomy #ileostomybag #ileostomyawareness #ileostomygirl #ileostomysurgery #colostomy #nocolonstillrollin #panproctocolectomy #barbiebutt #nurse #colorectalnurse #colorectalsurgery #lettingitalloutofthebag #nurseandpatient #noteverydisabilityisvisible #pca

What do you see? - 3 people
- 1 person has a stoma
- 2 people have active ulcerative colitis - 1 person is fighting a cold - 1 person has diabetes
- 2 people are thinking about where the toilet might be
- 3 people wore exactly what they wanted - 3 people are hungry, hot and sweaty

No one knows what’s going on underneath

#stoma #ostomy #ileostomy #stomaawareness #ostomyawareness #ileostomyawareness #ostomate #ileostomate #uc #colitis #ulcerativecolitis #crohnsandcolitisaustralia #family #mentalhealth #stomaproud #support #postop

Me and Taylor hanging out today keep me warm and fuzzy on this chilly Saturday afternoon. Thanks again @ostomysupportbears !

#ibs #ileostomy #stomabag #author #cp #cerebralpalsy #bookshelf #ileostomyawareness #support #supportileostomy #chronicpain

Today I received my ostomy supplies from @ostomydiaries . You guys are amazing. Thank you so much for your support!
#ileostomy #stomabag #author #cp #ileostomylife #ileostomyawareness stomaonwheels #ibs #ibsawareness #ibs #stomasupplies #stomasupport #cerebralpalsy

Annnd we are back 🤦🏻‍♀️. I was all up north with mike when the doctor called me this morning with positive blood cultures. So now back to the hospital for me...still waiting to know what the plan is.
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#ileostomy #ilestomybag #ostomy #ostomybag #ostomyawareness #ileostomysurgery #ileostomyawareness #ileostomystrong #babeswithbags #nocolonstillrollin #motilitydisorder #dysmotility #gastroparesis #chronicillness #colectomy

Woo! Hoo! to no arthritis but to having fibromyalgia, I say, screw you. I have got through ulcerative colitis, pernicious anemia, malignant melanoma, MRSA in my spine, surgeries that have had complications that have had me in so much pain, I've wanted to not be in the world and I also have a permanent ileostomy. I have nights where I hardly sleep due to pain and at times I cry because I'm so tired but I still get up and go to work, clean my home, cook the dinner and love my life. I will still be that friend that leaves the party early but not because I'm in pain and exhausted but because I'm a lightweight and I can't handle my drink 😁 I know some incredible people who get on with their life and to the world they look and seem fine but behind closed doors, they suffer and struggle but keep carrying on and to you all, I think you are amazing 😘 Every day I laugh and try to stay positive because that's who I am and how I get through the crappy times. I also have a very loving, patient and understanding husband, a wonderful family and fantastic friends, who I must drive crazy at times but I am what I am 😊 #fibromyalgia #ileostomyawareness #ulcerativecolitisfighter #livelifetothefullest #keepsmiling #perniciousanemia #loveyourself

#stomastylesaturday 💫
I haven’t done one of these in a while because I’ve had so much going on you know when you chuck a pair of leggings on and go or is that just me lol! Not very style inspiring especially when I’m trying to promote the fact you can wear so much more than just leggings oh just been pure lazy recently as I’ve had a lot going on.
This weeks look is inspired by @lisakateostomate go check out her style post they are amazing! But also to show you can wear tights with a stoma! These bad boys I know you can see much off but trust me when I say they are the bomb! There fleece lined and super stretchy so I can literally have them round my neck aha! Cheap as chips as well as they were from @aldiuk special buys!
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Hope you all have a great weekend every one. What’s everyone up too?

#stomastyle #stomastyles #stomasquad #stoma #ileostomy #ileostomybag #ileostomyawareness #ileostomygirl #nocolonstillrollin #colostomy #colostomyawareness #ostomate #girlswithguts #bagwhatbag #babeswithbags #noteverydisabilityisvisible #disabilityawareness #colorectalsurgery #barbiebutt #panproctocolectomy #nurselife #surgicalnurse #crohnsandcolitisuk #crohnsdisease #crohnswarrior #crohnsgirl #ulcerativecolitis #ibd #lettingitalloutofthebag

Cosy autumn/winter outfit all from @primark. I love this jumper, it’s so soft and stretchy and I have it in a few colours too. I’ve teamed it with a soft black and white skirt, it has a zip up the back and it’s so comfy. Then I’ve paired it with black tights and ankle boots. This outfit is really comfy and stoma friendly in my opinion, I bought a larger size opaque pair of tights so they wouldn’t dig into me and I went a size up in the skirt too for comfort And I’ve not had a leak in over a month as I’ve changed bags. I’ll post more on that next week. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #getyourbellyout #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood
#therealityofacrohnicillness #bodyconfidence

Happy Friday!

⭐️Fun Facts Friday⭐️

1️⃣ I’m obsessed with @disneyplus ❤️-I love Disney+ so much! It’s crazy how many shows and movies are on there! It’s amazing. I’ve been watch Lizzie McGuire like crazy.

2️⃣ I’m so excited for the Michigan vs Michigan State football game tomorrow.🏈- I’m a huge college football fan and i can’t wait for Michigan to play Michigan State tomorrow! As you can see I’m a big Michigan fan.

3️⃣ I stared a new highlight called Follow Friday!👌🏽-I decided to create a new high light and share Instagrams that I follow who i think you should follow to! I thought it would be a cool way to find new accounts, connect with others, and learn new things. (Let me know if you guys like this.)

4️⃣ I just finished @umbrellaacad 🌂-Guys I loved this show so much! It’s so amazing and ugh I cant wait for season 2. If you like super hero/suspenseful/crazy shows, you’ll love this!

5️⃣ I’ve been watching Even Stevens on Disney+🙌🏽-As a kid I loved this show so much and honestly I forget how funny it was. Totally check it out.

I hope you guys enjoyed these fun facts and I’m sorry I’m posting this so late. I honestly don’t feel the best but I still wanted to share this with you. So better late than never. I hope you guys have a good night and get some rest! Oh and please leave a fact about yourself. I love reading them.❤️
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#loveyourstoma #funfactsfriday # #chronicloveclub #ileostomy #ileostomyawareness #ostomy #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #girlwithguts #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie #ostomyawareness #ostomyinspo #funfactsfriday

Starting to feel a bit better. Yesterday I was hospitalized for vomiting and ridiculously high output....when we starting measuring I’ve have out almost 2L in 12 hours! In addition, I’ve had fevers, chills, and feeling just plain ick. I’m hoping to go home today to continue resting there.
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#ileostomy #ilestomybag #ostomy #ostomybag #ostomyawareness #ileostomysurgery #ileostomyawareness #ileostomystrong #babeswithbags #nocolonstillrollin #motilitydisorder #dysmotility #gastroparesis #chronicillness #colectomy

Repost from the ever fabulous and talented @jessica_k_miles! She is an amazing photographer and recently had some of her work published across the US. So we'll done Jessica, we love you! 🙌🏻💞 (PS. We wish it was warm enough here to chill out in tshirts and pants! ❄️) Original Caption :

Today (ooops tomorrow) is World Ostomy Awareness Day. It was created to start a conversation about ostomies, end stoma stigma and show support for the ostomy community! The aim was to draw attention for people with a stoma and a pouch, and their quality of life on a regional, national and international level. For 11 months I’ve lived with an ostomy and hope I’ve shown that one can thrive and live with confidence even with a belly bag! {more info in stories 👆🏼}
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Edit: I’m still out of it from my long trip, but Ostomy Awareness Day is tomorrow! I totally thought today was the 5th! 🤦🏼‍♀️ But no matter the day, it’s always good to spread awareness!!!!

Ostomy hack!

I’m not sure if I’ve done a post about this or not, but i thought why not share this again. So if you didn’t know baby wipes are perfect for cleaning your stoma. I use these every time I change my bag! It feels amazing on my skin and I haven’t had any reactions to it.

I know everyones skin is different so be careful when uses these but honestly any type of wipes works great! You could also use paper towels and water. But I like the wipes better! I hope this is helpful and if you have any question, away way!❤️
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#loveyourstoma #ostomyhacks #hacks #chronicloveclub #ileostomy #ileostomyawareness #ostomy #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #girlwithguts #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie #ostomyawareness #ostomyinspo

𝗧𝗛𝗘 𝗜𝗠𝗣𝗔𝗖𝗧 𝗢𝗙 𝗔 𝗦𝗧𝗢𝗠𝗔 𝗢𝗡 𝗦𝗘𝗫 𝗟𝗜𝗙𝗘
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Having a stoma should not stop you doing the things you did before your surgery. You may need to make some changes to your daily routine, but having a stoma can make life easier if you no longer have #IBD symptoms.
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Everyone deals with their stoma differently. How it affects your life and the way you feel will be individual to you. Your stoma #nurse and IBD team are there to help you.
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You may worry about how your stoma will affect your sex life. You may not be sure how your partner will react to your stoma or you may be worried about smells or noise from your stoma. It can take time for you and your #partner to get used to your stoma but gradually together you will be able to adjust.
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You may want to empty the bag before #intimacy or sex. As long as the bag is attached well, it should not get in the way. If you want to cover the bag, you can buy underwear or bag covers. If you have a colostomy, you could use a stoma plug.
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In some people, #surgery may damage the nerves and tissues that control sexual function, causing erectile dysfunction in men and painful sex in women. Having a stoma may improve your sex life if you are no longer having symptoms of IBD.
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For example, your desire for sex (libido) may increase if you are feeling well. Your GP or stoma nurse can give you advice on contraception. Some methods may not be suitable for you, depending on the type of stoma you have.
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For example, the #contraceptivepill may not be fully effective in some women with an ileostomy, particularly if there is an increased output from the stoma.
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For more information visit: https://www.crohnsandcolitis.org.uk/about-inflammatory-bowel-disease/publications/living-with-a-stoma
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#thegrumblinggut #crohnsdisease #ulcerativecolitis
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Instagram: @thegrumblinggut
Facebook.com/thegrumblinggut
Twitter.com/thegrumblinggut
YouTube.com/thegrumblinggut
www.thegrumblinggut.com

Celebrating love ❤️ Getting fitted for this beautiful lehenga the seamstress asked me to pull up my shirt so that she could properly take my waist measurements.
As I did, she gasped and in shock asked “what is that!” as she pointed to my bag and scars before ensuring me that she would make sure that my skirt covered it all.

It’s not the first time someone has been shocked when they saw my stomach, scars and ostomy bag and I know that it won’t be the last.

While I’m comfortable sharing my story and proud of my journey, it doesn’t mean that moments like this don’t sting just a little!

The only hope I have is that the seamstress is a little less shocked and accepting the next time she sees someone who looks a little different.

#stomaproud and #stomalove .
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#stoma #ostomy #ileostomy #ostomate #stomaawareness #ileostomyawareness #ostomyawareness #crohnsandcolitisaustralia #uc #colitis #ulcerativecolitis #getyourbellyout #nocolonstillrollin #hinduwedding #wedding #weddingcelebrations #weddingceremony #hindu #coloplast #sensuramio

𝗖𝗥𝗢𝗛𝗡’𝗦 𝗗𝗜𝗦𝗘𝗔𝗦𝗘 & 𝗟𝗜𝗩𝗜𝗡𝗚 𝗪𝗜𝗧𝗛 𝗔 𝗦𝗧𝗢𝗠𝗔
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If you have Crohn’s Disease in the colon, you may have an operation to remove most or all of the colon (colectomy).
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You may have an ileostomy or the surgeon may join the end of the ileum (last part of the small intestine) to the remaining healthy colon or to the rectum.
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If you have Crohn’s in the rectum or anus, you may have surgery to remove all or part of the #rectum (proctectomy) and the surgeon may need to create a permanent stoma to divert the digestive waste products.
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You may have a temporary stoma to relieve your symptoms before having this surgery. If the colon, rectum and anal canal need to be removed (proctocolectomy), you will have a permanent ileostomy.
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Very occasionally, some people with Crohn’s will need emergency surgery, for example, if they have:
• severe bleeding from the bowel
• a blocked #bowel
• a hole or tear in the bowel wall.
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They may have a temporary stoma after the surgery.
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For more information visit: https://www.crohnsandcolitis.org.uk/about-inflammatory-bowel-disease/publications/living-with-a-stoma
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📸: @targetovarian
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#thegrumblinggut #crohnsdisease #ulcerativecolitis
__________________
Instagram: @thegrumblinggut
Facebook.com/thegrumblinggut
Twitter.com/thegrumblinggut
YouTube.com/thegrumblinggut
www.thegrumblinggut.com

Apples? Yes!🍎

I thought I’d share with you guys my experiences with apples! So far everything has gone good. I was so nervous trying them with Todd. Because there’s some fruits I cant eat anymore or if I do eat them, I can’t eat a lot. Which sucks because I love fruit. But apples haven’t given me any problems thankfully.

I know everyone one is different when it comes to what they can and can’t eat with their ostomy. But I think sharing post like this can be extremely helpful. Because it gives you an idea of what foods you could try with your ostomy.

Its totally normal to be nervous when trying new food with your ostomy. Just take your time and eat a little bit at first, to see if it gives you any problems. I hope this helps or at least gives you an idea on what you can eat. If you have any questions ask away.❤️
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#loveyourstoma #chronicloveclub #ileostomy #ileostomyawareness #ostomy #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #girlwithguts #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie #ostomyawareness #ostomyinspo

I really wanted to come back on here and show some fashion bits I had for the autumn/winter. But as I’ve been floored with a really bad chest infection, I will be offline for another week. I thought it would clear with OTC stuff but I had to go see my GP this morning. It got worse the weekend and knew I needed help, so I’m on an inhaler as im wheezing and find it hard to breath when I talk/walk, a 5 day course of these Tamiflu meds if they don’t help in two days I’ve a weeks worth of antibiotics to take🤦🏻‍♀️🤦🏻‍♀️. So I’ll be in bed resting up as much as I can and sleeping. The joys of a crappy immune system, wonder if I write a letter to Santa could I have a new one for Christmas?😂I hope to be back soon feeling much better. Love to you all and hope you’re all as well as can be🥰🥰 #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #getyourbellyout #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood
#therealityofacrohnicillness #bodyconfidence

I’m so nervous putting myself out there like this but here we go. On November 26th, I will be entering the operating room to remove my jpouch and create a permanent ileostomy. It’s been a long and emotional 9 year journey, but I am ready to get my life back and start a new chapter. I first had an ostomy when I was 16 years old, and my biggest worry was fashion. Would I have to wear baggy clothes? Will I be able to wear a bikini again? Would I be able to follow the latest trends? All I wanted was someone I could relate to, but I had to navigate all these things alone. When I found out I may need an ostomy again at 24, I searched accounts on Instagram and stubbled upon a whole online community. These accounts not only made me feel less alone, they were empowering and inspiring. Although I am still not completely open about my ostomy (it’s a HUGE deal I’m even doing this rn), I want to join the online community that completely transformed my outlook. If I can help just one person feel more confident about fashion with an ostomy, I’ll be happy. So, stay tuned as I navigate my new life.

Spoonie life hack.

Guys I’m in so much pain right now. I know part of it is from my period but for some reason I’m having more pain than normal so I’m trying to keep my mind off the pain.

These are some of my hacks:
1) HEATING PAD-must have!
2)Fluids
3)Meds
4)Anything to keep your mind off the pain. For me it’s crocheting.

I know this is silly but I thought why not share this with you guys and if you guys are in the same boat as me, I hope you feel better soon! I’m sending you so much love and healing vibes.❤️
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#loveyourstoma #chronicloveclub #ileostomy #ileostomyawareness #ostomy #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #girlwithguts #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie #ostomyawareness

Good morning world! I just woke up and this little cherub was lying next to me. My dogs give me so much comfort and joy. They are so good for the soul. This little one, Bella, never leaves my side. Love her to pieces!! Btw she’s 12 and everyone thinks she’s a puppy 💖😘🐩 #puppylove #ileostomy #ostomy #ostomates #stoma #ileostomyawareness #tubelife #tubie #tubielife #gastroparesis #digestivetractparalysis #intestinalfailure #colonicinertia #zebrastrong #eds #ehlersdanlossyndrome #ehlersdanlos #ehlersdanlosawareness #youdontlooksick #chronicillness #chronicpain #invisibleillness #nevergiveup #believeinyourself #ostomyfashion #tubefeeding #hope #believe #faith #family

Have you ever wondered what the cost of a surgery could cost? Well, here’s how much my ileostomy surgery cost me. Keep in mind I was only there 3 days and mine was planned. Now imagine having to have an emergency surgery and having to stay longer? I was blessed that I never saw a bill (until last night) and insurance covered 100% of my surgeries and supplies! There are so many people out there that need the surgery and can’t afford it and that’s why health care is so important! It is needed!

#ostomy #ostomylife #ostomybag #ostomyfashion #ostomyawareness #ostomyblogger #ostomywarrior #ostomyproblems #ostomystyle #ostomycare #ostomygirl #ostomyadvocate #ileostomy #ileostomylife #ileostomyawareness #ileostomygirl #ileostomyawareness #ileostomyblogger #live #life #grateful #shithappens #sirpoopalot #healthcare #medicare #life #knowledge

One of my pet peeves...I loooove leggings but they don’t always work with my ostomy bag. If I pull them up over they tend to pull my bag down and I get less wear time 🤦🏻‍♀️. Comment below if you have suggestions on good leggings! For now...I’ll rock a cute bag cover 🥰
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Have a great day everyone!!!
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#ileostomy #ilestomybag #ostomy #ostomybag #ostomyawareness #ileostomysurgery #ileostomyawareness #ileostomystrong #babeswithbags #nocolonstillrollin #motilitydisorder #dysmotility #gastroparesis #chronicillness #colectomy #colitis #ostomystrong #leggings #leggingsarepants #aerieleggings

When you quickly run from the shower to living room bagless just to catch the good light, #priceless
#ileostomyawareness #ileostomyissues #stomahumor #stoma #meandmystoma #crohnswarrior #crohnsdisease #boweldisease

Bags Bags Bags

We concentrate a lot on ourselves, each other and our support teams- but the bags we use, no matter the brand, are extremely important as well!

Let’s be honest, we’d be nothing without those stick-on poop bags!

Tonight I was given the wonderful opportunity to share my story and talk about Ostomingle and ostomy support with Sydney stoma nurses thanks to Coloplast.

I’ve been using the same sensura mio bags for almost four years and was delighted to learn about their design and research and development- especially just how much Ostomates were involved in the process!

What bags do you use? Do you change bags and products often?

#stoma #ostomy #ileostomy #stomaawareness #ostomyawareness #ileostomyawareness #ostomate #ileostomate #nocolonstillrollin #getyourbellyout #coloplast #stomabag #stomaproud #ostomingle #ostomysupport #stomasupport #ileostomysupport #uc #colitis #ulcerativecolitis #crohnsandcolitisaustralia #crohnsandcolitis @coloplast

Bag emptying/bag changes 💩
I think most would agree with me when I say this is the biggest adjustment in your day to day life as an ostomate. You no longer have the luxury of your body and your brain letting you know “okay I have to go to the bathroom” instead your body just goes and depending on what you eat it can go ALOT. This can make bag changes MORE than a frustrating process when you take everything off you’ve cleaned the area and long behold your stoma decides to 💩 I think I cried throughout every single bag change for the first two weeks because it was so damn frustrating and so new to me. But just like everything else you adapt and you gotta learn to real fast because guess what no one else is going to do it for you, I remember posting in the support group one day in hospital so frustrated and someone messaged me straight away they explained if you go into your changes or even emptying with a negative mindset and already upset about the situation you’re only making it worse for yourself and they were so right, I’ve learned to just laugh when it seems like the minute I take a bag off my stoma like clockwork decides that’s the time it’s gonna go every minute🥴🙄 I play my music, always sit down and I just take my time - sometimes they go great and sometimes they go absolutely freaking awful. You need to find what works for YOU as for emptying for me I take a little plastic water bottle as shown in this picture - I fill it with COLD water so it doesn’t wear down the seal and each empty I fill my bag with the water and rinse it out (for me this gives me peace of mind and I feel cleaner) between emptying. I try to stop eating after 6 /6:30 and I seem to make it throughout most of the night - usually wake up once to empty but compared to waking up all night before I’ll take that any day!
There really are no right or wrong answers, only what does and doesn’t work for you 💜
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#ileostomy #jpouch #ulcerativecolitis #nocolonstillrollin #ileo #ileostomylife #invisibleillness #ileostomyawareness #bagchanges #colonless #ileostomydiet #stoma

What I have learned from working in the civilian world for the last month!!! 1. Civilian work ethics are lacking. 2. If not for my @stealthbelt slip on belt this transition would not have been as good as it has been.
3. My #stealthbeltband is the best thing since sliced bread for wearing dress shirts and slacks at work!!! Ostomy fitness🏃🏻‍♂️💪🏻🏋🏻‍♂️
Stealth belt ambassador
Discount code (DLAWLESS) $10 off $50 or more at www.stealthbelt.com
Recovering
Retired Army💥⚔️ #invisibleillness #ostomy #ileostomy #ostomyblogger #ileostomyblogger #ostomylife #ileostomylife #goanywheredoanything #ostomywarrior #ileostomywarrior #ostomyawareness #cronicillness #ileostomyawareness #urostomy #Stealthbelt #urostomyawareness #ostomybag #ileostomybag #urostomybag #ileostomylife #urostomylife #urostomywarrior #patientcoach #coloplast @coloplast
@stealth_belt @stealthbelt @patientcoaches

After drinking the white chalky barium, I felt nauseous. I was so good that I didn't vomit. I held it down. Drinking two cups was dreadful, but I did it. Hope the results tell something!! Fingers crossed!

#ileostomy #stomabag #cp #cerebralpalsy #ileostomyawareness stomaonwheels #testresults #ileostomygirl #ileostomylife #ileostomybag #girlonwheels

You are what you eat! When it comes to having Ostomy it’s a battle between you and your Ostomy! Here are a few tips to help you along the way:
1. Try new foods at home. This way if you notice an increase in output or pain you’ll be in the comfort of familiar territory.
2. Keep a food log. This helps you to remember what works and what doesn’t work especially if your doctor or WOC asks you about it.
3. If it’s green your poop will be mean! Meaning, you will have a lot of output as leafy foods will make you go, go, go!
4. All diets are different. What works for one Ostomate may not work for you.
5. Your poop can and will take on the smell of certain foods so don’t be alarmed.
6. If you eat something red chances are your poop will be red so no, it’s not blood.
7. Make sure you chew your food very well and drink plenty of liquids.
8. Don’t be afraid to try something new!

#ostomy #ostomylife #ostomybag #ostomyfashion #ostomyawareness #ostomyblogger #ostomywarrior #ostomyproblems #ostomystyle #ostomycare #ostomygirl #ostomyadvocate #ileostomy #ileostomylife #ileostomyawareness #ileostomygirl #ileostomyawareness #ileostomyblogger #live #life #grateful #shithappens #sirpoopalot #trips #tricks #hacks #lifehacks #life #live #wellness

Oh my goodness!

A huge thank you to my girl @chronicallyfabulousgianna for my amazing ostomy bag sticker! This is actually my first “Ostomy theme” sticker ever! So clearly I had to put on my hydro flasks. lol

Please check out her insta and give her a follow! I’m pretty sure she’s gonna start selling them. This truly means the world to me and I love it so much! Gianna you’re the best and thank you again!💛
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#loveyourstoma #chronicloveclub #ileostomy #ileostomyawareness #ostomy #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #girlwithguts #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie #ostomyawareness

Today, I am having the small bowel series test done to see what's going on in my stomach/ostomy. Had to drink two cups of horrible barium, but at least the ice makes it bearable to drink.
#ileostomy #stomabag #cerebralpalsy #ileostomyawareness testing #smallbowelseries

To think that ostomy surgery is usually a ‘last resort’ for most patients who suffer with IBD is still kinda silly to me. I didn’t have emergency ostomy surgery like some may have had but I advocated for it because my quality of life was non existant. I found it really difficult to see my friends and people around me go on with their lives. I was jealous of their health and I envied the freedom they had to just live. ✨ I suffered mentally just as much as I did physically. My Crohn’s disease started taking over my whole life. I don’t know about you but the picture in the left in 2015, I think I look pretty ill. I was malnourished, I suffered with anemia, I was underweight at 95lbs., I was having 20 ish bowel movements a day. I literally lived that way for 4 years. It makes me think how much ‘more sick’ would I have been if I didn’t advocate and push for my ostomy surgery⁉️ I felt like I was slowly fading away over those 4 years. Everything took up so many of my spoons 🥄 Since I’ve had my ostomy surgery I’ve been the healthiest I’ve ever been my whole entire life and am the h a p p i e s t I’ve been in a long long time. 🌸 Dont get me wrong I still have bad days and days where I don’t feel great but I have far more better days now then I did without my ostomy 💩Feeling grateful on this Monday morning ❄️🙏🏻








#ostomyawareness #ileostomy #ileostomylife #ileostomyawareness #ibdawareness #crohnsdisease #myostomysavedmylife

11/11

On this day in 2015 my life changed forever.

I went from a girl who was either on the toilet, thinking about how far I was from the toilet or what if I had to go to the toilet... To being carefree and empowered!

My stoma has truly changed my life, and despite the hell and ups and downs, the weak moments of wanting it gone forever, I wouldn’t swap it for anything!

Happy birthday little Raspberry! Thank you for giving me a fantastic life of carefree adventures!

Ps...look at those steroid cheeks in my last photos before surgery and first photos post stoma!

#stoma #ostomy #stomaversary #ileostomy #ileostomate #ostomate #stomaawareness #ostomyawareness #ileostomyawareness #uc #colitis #ulcerativecolitis #crohnsandcolitisaustralia #postop #stomaproud #steroids #moonface #nocolonstillrollin #getyourbellyout

Two posts reading 😊

Read a good line somewhere that everyone likes a good story, but that no one cares about your story, unless you're the winner in the end. So, I am thankful that I can share a bit of mine from the winners position.

Two years ago my life hit a reset button. I got diagnosed with a large intestine cancer. One moment you're physically active, mentally sound, 32y old and all of a sudden you become a cancer patient. No one can plan, no one is ready for something like that. Everything stops. All plans, ideas and wishes you had dissappear. You only have one goal ahead of you. To stay alive.

Diagnosis was severe. Like one isn't enough for anybody, I had six huge synchronous cancers throughout my large intestine and who knows how many polyps. Quite a collector. Should've collected stamps or napkins instead. 🤦‍♂️ I was so colonized by that poison eating me from the inside that there was no chance of saving any piece of my large intestine. All had to go out. At the first major surgery ileostomy was performed. To cut the story short a bit, I had 5 surgeries in less than two months, because things got complicated. Why wouldn't they... #winning #survival #cancersurvivor #ostomyawareness #ileostomyawareness #fucancer #chronicillness

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New to you old to me!
When I purchase clothing I always have my Ostomy in mind. I need to be cute but also realistic. These high waisted shorts are just that! That have a thick, elastic ban that stretches so it doesn’t feel like it’s hugging my bag. Also, they fit a little loose which gives my bag room to breathe and if I swell it’s not as noticeable! 📸 @_asiamariah
Shorts and top @sheinofficial @shein_us 👠 @shoedazzle
#ostomy #ostomylife #ostomybag #ostomyfashion #ostomyawareness #ostomyblogger #ostomywarrior #ostomyproblems #ostomystyle #ostomycare #ostomygirl #ostomyadvocate #ileostomy #ileostomylife #ileostomyawareness #ileostomygirl #ileostomyawareness #ileostomyblogger #live #life #grateful #shithappens #sirpoopalot #fashion #blackgirljoy #blackgirlmagic #live #life #fenty #adidas #shoedazzle #sheinofficial #shein

Does anyone else get deep pains in their thighs? Ever since they found the colitis I’ve had off and on deep pain in my thighs...almost felt like it was in both my femurs. Thank god for tiger balm patches which have provided tons of pain relief!
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#ileostomy #ilestomybag #ostomy #ostomybag #ostomyawareness #ileostomysurgery #ileostomyawareness #ileostomystrong #babeswithbags #nocolonstillrollin #motilitydisorder #dysmotility #gastroparesis #chronicillness #colectomy #colitis #pain #tigerbalm

Happy Friday y’all!

⭐️Fun Facts Friday⭐️

1️⃣ I call soda “POP”.🥤-I’m pretty sure this is just a Michigan thing, but whenever I’m referring to soda I call it pop! ALWAYS. I can’t help it. #michigander

2️⃣ I’ll be 27 in December!😱-So my birthday is December 7th and I can’t believe soon I’ll be 27. That’s crazy to me and I’m not ready! Send help and yes I’m a Sagittarius.🤣

3️⃣ @jennamarbles is my QUEEN!👸🏼-I love her videos so much and I think she’s the funniest “33 year old lady” on YouTube. If you watch her videos, you know you read that in her voice. Lol

4️⃣ I love my new heating pad!☺️-So if you seen on my insta story, my mom got me this new heating pad and OMG ITS AMAZING!! I love it so much and the best part is you can also freeze it!🙌🏽 (I’ll do a post on it soon.)

5️⃣ I kinda hate my short hair.😭-I think short hair is super cute! And I love it on other people, however it’s so hard to style it! Idk what to do with it...again send help.🙃

I hope you guys enjoyed these fun facts! Please leave one about yourself!! I love reading! And thank you so much for all your love and support on my last post!! It truly means the world to me that you guys agree and love my what I share! Thank you so much!❤️
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#loveyourstoma #funfactsfriday #funfacts #chronicloveclub #ileostomy #ileostomyawareness #ostomy #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #girlwithguts #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie #ostomyawareness #ostomyinspo

Throwing back to the 80s

Almost 8 weeks post-op and I thought I’d take my abs for an epic 80s themed spin! Aerobics, Pilates and yoga fit!
People always ask me how soon after surgery they should get back to the gym, or when/if they can do ab work

And honestly I have no idea! I can only tell you my experiences but we’re all very different!

Today, during an intense ab workout I was able to do all the work, albeit with some slight modifications at times!
My rule...listen to your body! Push it to where it is working, not in pain!! And the most important- find yourself a trainer as amazing as @pilates_with_susan who works in the necessary modifications! Don’t expect to do everything on your first day!

#pilateswithsusan #pilates #aerobics #yogafit #clife #gym #workout #80sworkout #stoma #ostomy #ileostomy #nocolonstillrollin #crohnsandcolitisaustralia #uc #colitis #ulcerativecolitis #ostomate #ileostomate #stomaawareness #ostomyawareness #ileostomyawareness #postop #laparotomy #stomaproud

Happy stomaversery to my little Paloma the stoma! This week last year I was in hospital getting Paloma made up and thinking that I would be be done with surgery for at least a while. How wrong I was and I’m back here again this week haha. But I couldn’t be more grateful for having my ileostomy, for the freedom it’s given me and for my surgeon making my scar a bit more pretty (if you know, you know 😉) Crohn’s has been an absolute battle for me for the last 10 years and I’ve never yet been in remission, but I will get there one day! Photo was taken as part of @selflovebynatalieamber1 which I’ll share more about next week - exciting! 😱🥰
📷: @iamknowlesieboy 💄: @_pearl_001
Posing inspo: @natalie_amber1 😂

Let’s chat!

Back story to this post: someone got upset that I showed the mess from my bag changed. They called it TMI and unnecessary, because they have an ostomy too and people who already have one know this.

Anyway for those that don’t know, I post everything when it comes to my ostomy. The good, the bad, and especially the ugly. Because that’s what it’s like to have an ileostomy. Nothing is perfect. Yes there’s days that are amazing but there’s also days that are horrible. And I share all of this because I NEVER want anyone to feel alone. When I first got my ostomy, I felt so alone and that is the worst feeling in this world. So if I can help others feel less alone in this shit show, I will. So It is necessary to show a bag leak? No. It is necessary to show the mess I made? No. But I will because like I said I never want someone to feel alone.

I understand you can comment on my photo but if you don’t like it, than why do it? You don’t have to follow me or comment on my page, even if you follow the group that i use for my hashtags. Yes you’re free to. But why? It makes no sense to me. And if you have an ostomy and life is perfect. Good for you. But not everyone is like that. So I’ll continue to show it all.

I hope you guys are having a great day and I don’t mean to offend anyone but this is my page and I’ll post it all. No matter what anyone thinks. Anyway i just wanted to share this aNd thank you all for your support. It truly means the world to me.❤️
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#loveyoustoma #chronicloveclub #ileostomy #ileostomyawareness #ostomy #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #girlwithguts #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie #ostomyawareness #ostomyinspo

𝗪𝗛𝗔𝗧 𝗔𝗥𝗘 𝗟𝗢𝗢𝗣 𝗔𝗡𝗗 𝗘𝗡𝗗 𝗦𝗧𝗢𝗠𝗔𝗦?
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A loop stoma is formed from a loop of bowel brought to the surface of the abdomen. An opening is made in the wall of the bowel and the edges are stitched to the abdomen.
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The contents of the bowel pass out of one end of the loop into the stoma bag. The other end of the loop does not pass any digestive contents but may pass some mucus. Loop stomas are usually temporary but can be permanent.
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An end stoma is formed from the cut end of the bowel. The surgeon brings the end of the bowel to the surface, folds it over and stitches it to the skin on the abdomen. End stomas can be permanent or temporary.
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For more information visit: https://www.crohnsandcolitis.org.uk/about-inflammatory-bowel-disease/publications/living-with-a-stoma
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📸 www.ostomy.org
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#thegrumblinggut #crohnsdisease #ulcerativecolitis
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Instagram: @thegrumblinggut
Facebook.com/thegrumblinggut
Twitter.com/thegrumblinggut
YouTube.com/thegrumblinggut
www.thegrumblinggut.com

Thanks Drew for helping a girl out with her hair dilemma. It was time for a change with all the hair loss from medical issues. I love the rose undertones. #nocolonstillrolling #invisibledisability #invisibleillness #girlswithguts #nocolon #nocolonnoproblem #ileostomyawareness

Calling all #Ostomates!

Don't forget that 10% of our profits go to charity!

For July - December we have chosen A Bear Named Buttony. This organisation makes cute teddies with ostomies and other medical devices to help both kids and adults come to terms with their medical conditions!! A very worthy cause. We have already donated enough for one bear, so hopefully we can fund a couple more by the end of the year 🐻🐻

Acceptance is everything. Accepting my body and ostomy for what it is is not easy and is an ongoing process. 13 more days until my appointment with mayo with colorectal surgery! Part of me is grieving the loss of the ability to return to “normal.” It’s ok for me to feel that way and for those who are struggling...it’s ok to feel that way too! I think you need a period to grieve the loss of a normal function....for me it is starting the grieving process for my Barbie butt surgery.
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Btw..:I wanted to announce that for my DNP project I am starting an ostomy blog...pretty much what I do on here but making it to a bigger scale and I hope to be able to share my own words of wisdom with others. If anyone thinks of some good topics you would like to see covered let me know or send me a message! ❤️
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Much love!! ❤️❤️❤️
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#ileostomy #ilestomybag #ostomy #ostomybag #ostomyawareness #ileostomysurgery #ileostomyawareness #ileostomystrong #babeswithbags #nocolonstillrollin #motilitydisorder #dysmotility #gastroparesis #chronicillness #colectomy #colitis

Update...with a messy a bag change.🙃

First the update! I’m sorry I didn’t update you guys last night from my ER trip. I was so tired when I got home that I went straight to bed. So all the test came back good and they aren’t sure why my stoma is acting up. It’s still swelling, changing colors, and I’m still having pain. They just don’t know why. So I have to meet with my surgeon sometime next week. So it’s good need but bad news. I’m just tired of having these problems with no answers. It’s so frustrating.

Anyway if you swipe right, you’ll see a huge mess I just made because it took me 45 mins to change my bag. Why you may ask?? Because Todd wouldn’t stop pooping.🙃 but as soon as I put my bag on. It stop going. Like completely stops. Just my luck.😭🤣 This was probably the longest bag changed I’ve done in a very long time. If this happens to you just laugh it off after and please know it’s happens to all of us! You aren’t alone.❤️

I just want to thank you guys so much for all your sweet messages. It truly means the world to me. I love this community so much. You guys are truly the best and more like family and internet besties.❤️ oh and hopefully my bag change nightmare made you laugh. Because at first I was so mad but now it’s funny.🤣👏🏼
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#loveyourstoma # #chronicloveclub #ileostomy #ileostomyawareness #ostomy #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #girlwithguts #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie #ostomyawareness #ostomyinspo

Last night, my boyfriend and I attended the monthly ostomy support group at our local hospital, and we received our certificate of completions to be an “ostomy visitor”. An ostomy visitor an ostomate who visits a new ostomy patient in the hospital to help them transition into, well, shitting in a bag attached to your abdomen, possibly forever. An ostomy visitor can also be a spouse of an ostomate to help new ostomate spouses during this time as well (support is key, my friends). This is important because many individuals who receive an ostomy have difficulty accepting their new reality, and it is important that these individuals meet someone else with an ostomy to know that it’s going to be OK- because it is 🥰🥰 Shoutout to Peace Health at Riverbend In Springfield Oregon for doing a PHENOMENAL job with their ostomy patients physical AND mental health. Seriously, I was treated with respect and attention pre and post op due to wonderful wrap around care with the colorectal surgeon, ostomy nurses, and home health nurses. I am honored to help those struggling with an ostomy. If I can do it you can too 👊💯💪

Gotta love it when you wait for appointments. 30 minutes and counting... but really, why do I have to be on time? #doctorsappointment #stomanurse #stoma #stomaawareness #ileostomy #ileostomyawareness #ulcerativecolitis #crohns #foreverwaitingondoctors

When you look as bad as you feel. So excuse the messy hair and my face😂😂slept most of the day, yet I still look like crap and feel exhausted. Have a head cold or something going on. I’m sneezing a lot, blocked nose, burning eyes, headache and small cough and my skin has broke out🤦🏻‍♀️So my flu jab is on hold til this passes. Going to try stay home, pjs on for the foreseeable,
Stay in bed and try keep my fluids up. Hope you’re all doing well? I’ve not been about much as just having some me time. But aside from my cold, I’m doing well Crohn’s and arthritis wise. #crohnicallyawesome #ostomyfashion #notalldisabilitiesarevisible #ibdawareness #crohnsdisease #ostomate #spoonielife #ileostomyawareness #ileostomylife #crohnicillness #whatbag #bagforlife #babeswithbags #stoppoobeingtaboo #ulcerativecolitis #IBDlife #spoonie #ostomy #stomalife #getyourbellyout #IBDsuperheroes #sepsissurviour #endthestigma #sickbutinvisble #wearwhatmakesyoufeelgood
#therealityofacrohnicillness #bodyconfidence

So honoured to be apart of the Me, my bag and I podcast @saltshealthcare are doing ay the minute. I had a lovely day talking all things mental health when it comes to having a stoma and the effect it has after on your mental well being. I’d love it if you could go take a listen to mine and lorna’s chat @getyourbellyout_official with the overall message ‘It’s ok not to be ok’ 💚

https://www.salts.co.uk/podcasts

#saltshealthcare #saltsconfidencebe #confidencebe #stoma #stomasquad #ostomy #ostomyawareness #ostomate #ileostomy #ileostomylife #ileostomygirl #ileostomyawareness #nocolonstillrollin #colostomy #crohnsandcolitisuk #bowelcancer #colorectalcancer #barbiebutt #panproctocolectomy #colorectalsurgery #bagforlife #bagwhatbag #babeswithbags #podcast #ostomyblogger #mentalhealthmatters #mentalhealthawareness #everybodyisagoodbody #lettingitalloutofthebag

Trying to get as prepared as possible. I’m going to attempt a blog soon, to log my journey. Tonight I got out my pre-surgery care kit, trying to get mentally prepared. The girls had a good time with it. Teaching them and the world of stomas. #ulcerativecolitis #ulcerativecolitisfighter #ileostomy #ileostomyawareness #ileostomybag #stoma #journeytojpouch #jpouch

Anyone? Please tell me I’m not the only one going through this. It’s so frustrating and disheartening. 💔 #nocolonstillrollin #ileostomy #ostomy #ileostomyawareness

😋😋😋

Guys i still feel horrible, so I’m trying to eat liquids. I know @mikesmightygood spicy ramen probably isn’t the best because it’s spicy but I needed to eat something light. And this was the only thing that sounded good. I’m also drinking a lot of water and it’s hard to drink just normal water. So I’m drinking @hint blackberry water. (I promise it’s not sponsor I’m just obsessed and still highly recommend you try it.)❤️

Anyway I just wanted to let you guys know what’s going on. Like I said I still don’t feel good and if things aren’t better tonight, I’ll just go in. I’m tired of waiting and feel missable.

Thank you again for all the sweet words. You guys are truly amazing and more like internet besties/family. I love you and appreciate you so much.❤️
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#loveyourstoma #chronicloveclub #ileostomy #ileostomyawareness #ostomy #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #girlwithguts #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie #ostomyawareness #mikesmightygood #mikesmightygoodramen #hintwater #hint

Two & a half years ago I lost most of my small bowel to #churgstrauss ... I was lucky I woke up.. & I woke up with an ileostomy ...it saved my life.. it didn’t bother me having it at all...but sadly I was unlucky & it wasn’t a very well behaved wee guy & I was having to empty it 50/60 times per day 😩... so didn’t have much of a life & could plan much..I was also losing most of my nutrients from it & kidneys were taking a big hit... so two years ago today I had it reversed... I only have 103 cm left..so the surgeon carried out an amazing job & I got my life back....don’t need to go to the loo 60 times per day .... my ileostomy was extreme & I have many friends with them.. also my sister has had one for over 30 years ( unrelated).. I do miss my designer covers tho 🤪 #churgstrauss #churgstrausssyndrome #autoimmunedisease #ileostomyawareness

Update.

If you saw my insta-story, I told you guys that my ostomy nurse suggested I make an appointment with my surgeon because I’m still having problems with my stoma. My stoma nurse can only help with surface level stuff. I’m still having swelling, my stoma is changing colors, and my output has decrease. (It’s been going on for about 2 weeks now.)

So I called her office and my surgeons nurse told me, I can’t see her until Wednesday (when she’ll be in the office) but if things get worst to just go to the ER.🙄🙃 Side note: I’m laying down because I’m so nauseous and my stomach is hurting a lot.

So basically I’m playing the waiting game. This isn’t the best new but at least they called me back. If anything gets worst or I go in, I’ll let you guys know. But i just want to say thank you so much for all your love and support! It truly helps and means the world to me.❤️
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#loveyourstoma #chronicloveclub #ileostomy #ileostomyawareness #ostomy #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #girlwithguts #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie #ostomyawareness

CHICKEN TANDOORI WITH SAAG ALOO AND BASMATI RICE.
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Finally found a tasty recipe that follows my low residue diet and is slimming world friendly. If I wasn't on a low residue diet I could have added onion to both the tandoori chicken and the saag aloo. I would have had a load more veg as well but hey ho, have to stick with what I'm allowed!

Saag Aloo recipe is @pinchofnom
Swipe➡ for the tandoori chicken recipe which I found on an NHS website after trawling the internet for hours for low residue diet meal ideas.

#lowresiduediet #lowresidue #lowresiduefoodplan #stomadiet #stomadietfriendly #postblockagediet #partialileostomyblockage #stomalife #ileostomy #ileostomyawareness #ulcerativecolitis #ulcerativecolitisawareness #slimming #slimmingworlduk #slimmingworld #swuk #weightloss #weightlossjourney #recipes #healthyeating #eatyourselfwell #eatingwithastoma #pinchofnom #pinchofnomrecipe #nhs

Modern day Popeye! #Tip wearing an oversized blazer or jacket will help conceal your bag. Also, my pants are high waisted which helps concealing as well.
👖 @fashionnova 👚 @sheinofficial
Blazer and 👠 thrifted
🎩 Iva gave it to me
#ostomy #ostomylife #ostomybag #ostomyfashion #ostomyawareness #ostomyblogger #ostomywarrior #ostomyproblems #ostomystyle #ostomycare #ostomygirl #ostomyadvocate #ileostomy #ileostomylife #ileostomyawareness #ileostomygirl #ileostomyawareness #ileostomyblogger #live #life #grateful #shithappens #sirpoopalot #fashion #shein #fashionnova #thrifting

It's so hard trying to stay strong when you are in a constant battle with your body. The fatigue has set back in now (possibly anaemic) and I don't have the energy to do the smallest of tasks, I'm now dreading my pre surgical assessment.

#ittakesguts #lifetakesguts #ulcerativecolitis #proctitis #ileostomate #ileostomyawareness #ileostomy #ulcerativecolitisawareness #ibd #ibdwarrior #ibdawareness #proctectomy #surgery #bloodloss #flareup #strength

High waste legging!👌🏽

Guys I love leggings so much. Fun fact: I don’t wear jeans...EVER. For two reason. 1) I can’t find any that fit me. I have very wide hips and chicken legs.🤣 which makes it really hard to find a pair to fit. Because in the waste I’m about a 4 but in the legs I’m probably a 1-2. And 2) they are so uncomfortable.

So I stick with leggings and recently (since Todd became apart of my life) I’ve loved high wasted leggings. If you’re an ostomate looking for extra support around your ostomy totally check out high wasted leggings. These are from @aerie and they’re my all time favorite.💚

Just wanted to share this with you guys! I hope you’re having a good Sunday. I’m spending it watching Disney movies and relaxing. I still don’t feel the best so I need a rest day and if you aren’t feeling good, sending you so much love, positive, and healing vibes.
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#loveyourstoma #aeriereal #AerieReal #chronicloveclub #ileostomy #ileostomyawareness #ostomy #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #girlwithguts #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie #ostomyawareness #ostomyinspo

Top #ileostomyawareness posts

What do you see? - 3 people
- 1 person has a stoma
- 2 people have active ulcerative colitis - 1 person is fighting a cold - 1 person has diabetes
- 2 people are thinking about where the toilet might be
- 3 people wore exactly what they wanted - 3 people are hungry, hot and sweaty

No one knows what’s going on underneath

#stoma #ostomy #ileostomy #stomaawareness #ostomyawareness #ileostomyawareness #ostomate #ileostomate #uc #colitis #ulcerativecolitis #crohnsandcolitisaustralia #family #mentalhealth #stomaproud #support #postop

Update.

If you saw my insta-story, I told you guys that my ostomy nurse suggested I make an appointment with my surgeon because I’m still having problems with my stoma. My stoma nurse can only help with surface level stuff. I’m still having swelling, my stoma is changing colors, and my output has decrease. (It’s been going on for about 2 weeks now.)

So I called her office and my surgeons nurse told me, I can’t see her until Wednesday (when she’ll be in the office) but if things get worst to just go to the ER.🙄🙃 Side note: I’m laying down because I’m so nauseous and my stomach is hurting a lot.

So basically I’m playing the waiting game. This isn’t the best new but at least they called me back. If anything gets worst or I go in, I’ll let you guys know. But i just want to say thank you so much for all your love and support! It truly helps and means the world to me.❤️
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#loveyourstoma #chronicloveclub #ileostomy #ileostomyawareness #ostomy #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #girlwithguts #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie #ostomyawareness

💖🌻🦋🌸💖 @thebaglifeofbeck : "Same girl, different day 💜
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This is what an invisible illness looks like. The girl on the right is just as sick as the girl on the left. But she’s learnt to hide it well, let’s call her a master of disguise, she has a disability but you would never know looking at her. She is not sick but she is not healthy. On that day, she wanted to feel like a “normal” healthy person and to forget the battles she was constantly facing. .
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The girl on the left is brave, bold and not afraid to share her vulnerable side. To share the truth of how strong she actually is and what her body is capable of however, due to her being brave and bold you can SEE her disability. She is also not sick but not healthy, but looking at her you would think she’s more sick in this photo than the one on the right. But you’d be wrong if you thought that was the case. Just because she looks sick doesn’t mean she’s any less sick than the girl on the right.
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Not everyone is brave and bold & some days I’m not either and that’s okay. People want to keep their vulnerabilities close to them and sometimes not brave enough to let people see their imperfections (even though they’re absolutely beautiful) that’s also okay. Just remember that not every disability is visible and to be kind always.
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Like I said, same girl, different day 💜💗 #samegirldifferentday " 🌻👭🌻 @thebaglifeofbeck 💫

To think that ostomy surgery is usually a ‘last resort’ for most patients who suffer with IBD is still kinda silly to me. I didn’t have emergency ostomy surgery like some may have had but I advocated for it because my quality of life was non existant. I found it really difficult to see my friends and people around me go on with their lives. I was jealous of their health and I envied the freedom they had to just live. ✨ I suffered mentally just as much as I did physically. My Crohn’s disease started taking over my whole life. I don’t know about you but the picture in the left in 2015, I think I look pretty ill. I was malnourished, I suffered with anemia, I was underweight at 95lbs., I was having 20 ish bowel movements a day. I literally lived that way for 4 years. It makes me think how much ‘more sick’ would I have been if I didn’t advocate and push for my ostomy surgery⁉️ I felt like I was slowly fading away over those 4 years. Everything took up so many of my spoons 🥄 Since I’ve had my ostomy surgery I’ve been the healthiest I’ve ever been my whole entire life and am the h a p p i e s t I’ve been in a long long time. 🌸 Dont get me wrong I still have bad days and days where I don’t feel great but I have far more better days now then I did without my ostomy 💩Feeling grateful on this Monday morning ❄️🙏🏻








#ostomyawareness #ileostomy #ileostomylife #ileostomyawareness #ibdawareness #crohnsdisease #myostomysavedmylife

So this is the other side of the always happy, healthy looking, beautiful dresses and make up wearing me. Naked face and with my stoma bag. Usually people say I don't look sick, but this is what it looks like under my clothing and I'm not ashamed of it, only hoping to help raise awareness for invisible illness. I've got multiple invisible chronicles illnesses, so don't judge someone only by how they look on the outside #chronicillnesswarrior #crohnsawareness #noteverydisabilityisvisible #butyoudontlooksick #thisisalsome #unpinnedpinup #chronicillnessawareness #chronicillness #dontjudgewhatyoudontunderstand #dontjudgeme #reumatoidarthritis #fibromyalgie #mentalhealthawareness #ziektevancrohn #chronischziek #stoma #ileostomyawareness #ileostoma #crohn #fightingchronicillness #dutchpinup #noteverythingiswhatitseems #notashamedofmybody #bodypositive

Guess who went back to work today?!
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Guess who had a poo-plosion during their first class?!
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Success? .
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Yes...because the goal was to get to work and I did!
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Little steps to reach a goal! That’s all it takes!
#stoma #ostomy #ileostomy #ostomate #ileostomate #ostomyawareness #ileostomyawareness #stomaproblems #nocolonstillrollin #getyourbellyout #mentalhealth #smallsteps #pooplosion #stomaproud

Happy Halloween from me and Todd!

Last year I turned Todd into a ghost, so I thought it would be pretty cool to turn him into a headstone this year. Also I put 1992 because that’s the year i was born and in 2017 is when I stopped using my colon.🤣

R.I.P Colon. I would say, you will be missed but honestly I’m doing so much better without you. I hope you guys have a fun and safe Halloween! And remember to find the joy in your ostomy!🖤💀
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#loveyourstoma #ostomycostumes #chronicloveclub #happyhalloween # #ileostomy #ileostomyawareness #ostomy #ostomybag #ostomate #ostomywarrior #warrior #stoma #chronicillness #chronicpain #girlwithguts #nocolonstillrollin #ittakesguts #toddtheostomy #chronicallymotivated #coloplast #spoonie #ostomyawareness

6 weeks post-op

Time to regain all my muscle and stop walking like an old lady!

I’m always surprised how quickly my muscles atrophy... That being said, I probably should have gone back to the gym a while ago!

Baby steps and baby weights!

How soon after abdominal surgery did you go back to working out?

#stoma #ostomy #ileostomy #nocolonstillrollin #getyourbellyout #scars #surgery #postop #stomaawareness #ileostomyawareness #ostomyawareness #stomaproud #gym #mentalhealth #workout #backtofit #weighttraining #muscleatrophy #laparotomy

9 months with my stoma baby 💖🤰🏾 Her likes include: Rye bread, Green Tea and Weetbix. Her dislikes include: Fibrous Veggies, Warm Yoga and Chemotherapy. When she first came along we had our differences, she'd wake me up most nights and make a mess in bed. But in the end, she saved my life. Although we will be parting ways in the next month or 2, I'll never forget her and the many life lessons she taught me. I love you stomy, thnx 4 th mmrs 😘 💩