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#spoonie Photos & Videos

spoonie - 2.1m posts

Repost from @themightysite using @RepostRegramApp - Shout out to anyone whose body doesn't always "cooperate" on a day-to-day basis. We know just how frustrating it can be to never know how you'll feel, how much energy you'll have or what symptom you'll have to manage. We hope these words from @thisthingcalledrecovery make you laugh through the struggles (or remind you that we acknowledge your experience💯):
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"Ever feel like your sick body is like a stressed out parent that won’t let you do what you want?

Everything I like doing isn’t allowed apparently. No explanation, no negotiation. Just a hard no.

Damn.

Back to my room I go..."
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Can you relate?
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#chronicillness #Fibromyalgia #spooniesupport #mentalhealthsupport #chronicallyill #lupus #migraine #chronicpain #chronicfatigue #spoonie #recovery #crps #mecfs #spooniecommunity #chronicillnesswarrior #invisibleillness #butyoudontlooksick #lymedisease #autoimmunedisease #chronicfatiguesyndrome #crohns #gastroparesis #raredisease #disability #mentalhealth #mentalhealthawareness #themightysite #mightytogether ********************
[image description: pink and white text on a deep red color block from The Mighty that says, “Me: I would like to do a thing.

My body: I don’t think so.

Me: But why?

My body: I said no.

Me: This is so unfair.

My body: No back-talk. Go to your room!” /end image description]

It’s #crohnsandcolitisawarenessweek I’m wishing the best for us all. We all suffer a bit differently, some a bit worse off than others. But I’m so thankful to the doctors and family who have treated and supported me along the way. And also to those who continue to deal with me, y’all are pretty special. It’s a long rocky road, but it feels great to have someone special in your corner @laurengrimmtx :
💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜💜
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#bestwishes #awareness #support #positivevibes #ibdvisible #ccawarenessweek #invisibleillness #crohnsandcolitis #ulcerativecolitis #colitis #crohnsdisease #crohns #spoonie #colitisawareness #colitiswarrior #ulcerativecolitisfighter #ostomyawareness #ostomy #ileostomy #bowelresection #ostomytakedown #ibd #ibdawareness #ibdwarrior #autoimmunedisease #autoimmunestrong #ibdtravel #chronicallyadventuring

Do you find 'Arthritis-Friendly' shoes affect the way you dress?⁠
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Head over to our profile page and tap the link in our bio to read Rosemary's struggle with finding footwear that gives her style and comfort.⁠
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#chronicdisease #chronicillness #chroniclife #invisibledisease #invisibleillness #spoonie #spoonies #spoonielife #autoimmunedisease #health#rheumatoidarthritis #arthritis365 #shoes

We believe in you Chronic Crew! 📷: @NewBeauty #cauliflower #pizza #aip #spoonie

ID: text at the top reads "when my symptoms flare and I can't stand any light or sound." Beneath is a photo of Gabe from the office, angrily saying "shut up about the sun, shut up about the sun," with captions. ---------------------------------------------------------------------------
#InvisibleIllness #InvisibleIllnessWarrior #NotAllDisabilitiesAreVisible #Spoonie #Spoonies #SpoonieSupport #SpoonieSisterhood #SpoonieCommunity #SpoonieMemes #ChronicConfessions #ChronicIllness #ChronicIllnessWarrior #ChronicallyIll #pwME #MECFSWarrior #MECFS #ButYouDontLookSick #WhereTheTiredGirlsAre

When you have an invisible or chronic illness, it’s pretty common to feel alone at times. On Episode #63, I talk with @katiedalebout and @serenagwolf, hosts of the podcast “Spiraling,” about how they started this “optimistic” anxiety podcast and why it’s cathartic (for them and others) to talk about their anxiety.

I TOOK THESE FROM MY NEIGHBOR’S YARD!
Plans to grow my own herbs have been in the works ...too long! Thank goodness for the kindness of neighborhood gardeners! There is nothing better than plucking fresh herbs and breathing them in immediately, then cooking with them right after! What a haul this time!
ROSEMARY for brain and pain, relieves stress and inflammation!
SAGE has antioxidants to protect from chronic illness, inflammation, cancer, free radicals ... blood sugar, and skin!
MINT soothes and supports that GI, IBS, digestion, even colds!
SMELL THEM! EAT THEM! LOVE THEM! HERBS ARE MEDICINE FOR ALL YOUR SENSES! ✌️❤️🌈 #organic #holistic #vegan #sugarfree #dairyfree #glutenfree #herbs #fibromyalgia #ibs #aromatherapy #garden #goodvibes #rosemary #mindset #vegetarian #plants #greens #keto #paleo #autoimmune #spoonie #sage #wellness #essentialoils #chronicillness #whole30 #positive #mint #peace

This.
This is what needs to be on every accessible toilet.
I spotted this at Strensham Southbound Services last night. @birminghamairport also had an accessible toilet but I didn't get a picture of that but it said the same thing.
I was proud to use this toilet and not feel ashamed because I wasn't in a wheelchair.
#thefuture #notalldisabilitiesarevisible #accessibletoilet #accessibletourism #cfsme #fms #invisibledisability #chronicillnesss #invisibleillness #chronicpainlife #chronicfatiguesyndrome #fibromyalgia #spoonielife #spoonie

Remove the stressors and change your lifestyle if you have #hashimotos !

Happy to say were here and ready to go several hours earlier than our ETA. Giving me plenty of down time before ticket grabbing and grocery shopping. #mff #midwestfurfest #disabledfurry #spoonie

Day 5 My @mancandykings debut (March or April 2019) for "The Sinner" at Silverlake Lounge 📷 @holistic_chaos
#10daydragchallenge #ladeagking #ukdragking #alldragisvalid #QuincyDents #lgbtqpluscommunity #lgbtq #queer #spoonie #nonbinary #enby #trans

Anymore I feel like it’s one step forward ten steps back with life in general...
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Health problems for me and my family members, stress, depression, anxiety, car problems, fitness setbacks & life in general it just keeps throwing punches knocking me down every time but I some how refuse to quit..
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Some days I just keep saying to myself I don’t know how much more of this I can take but yet some how I find the inner strength to keep pushing on. I can only hope that tomorrow’s a better day or that all of this is being done to me for some unknown reason that will make me a stronger or better person in the end. I can’t lie and say I don’t want to quit some days but I know I can’t and I can keep hoping life will take a turn for the better sooner than later....
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#sicklytohealthy #stress #anxietyproblems #depressionhelp #lifestruggles #chronicpain #chronicillness #spoonie #spoonielife #lifekeepsknockingmedown #herniateddisc #herniateddiscrecovery #colotis #inflammation #inflammatoryboweldisease #invisibleillness #stressmanagement #stressedout

SOCIAL MEDIA 📱 | Wie maakt er tegenwoordig geen gebruik van?! 😉Vrijwel iedereen heeft wel een Facebook of Instagram account. En hoewel social media een fijne manier kan zijn om contacten te leggen als je chronisch ziek bent - psychisch of fysiek - kan het ook lasten met zich meebrengen. ⁠

Je ziet immers de hele dag door de perfecte plaatjes van perfecte levens die laten zien dat jouw leven toch echt niet zo perfect is. 🤔⁠

Social media gebruik met een chronische aandoening kan een positieve maar ook een negatieve invloed op je hebben. Op ECJP.nl delen we er meer over + 6 handige tips om social media in je voordeel te gebruiken 😄⁠

Lees het via de link in bio: @ervaringscentrum

Wat vind jij de voor- en nadelen van social media?⁠
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#ECJP #ervaringscentrumjongperspectief #ervaringsdeskundige #jongeren #vooréndoorjongeren #ervaring #chronischeaandoening #chronischziek #ziek #spoonie #chronischevermoeidheid #chronischepijn #onzichtbaarziek #psychisch #fysiek #beperking #aandoening #handicap #socialmedia #voordelen #nadelen #instaperfect #perfectleven #keuzes #acceptatie

Is this a normal flare-up or was it something you ate? There are various food triggers that can cause you to flare-up and they could sometimes cause them to be much worse than usual. Are there any foods that cause your chronic pain to wreak havoc? Tell us in the comments!
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#pelvicpain #chronicpain #spoonie #pelvichealth #spoonielife #endowarrior #spices #spicy #foodie #caffeine #sugars #sweetners #spicyfood #peppers

Out n about! Every outing is an accomplishment! 🙌🏽♥️♥️🖤💚💚💚💚🚗🏦🌅❄️☃️ #gastroparesis #fighter #spoonie #tractorsupply #walmart #sunnydays

Back to waiting for lab results. Some regarding my AIH, some for possible new and different diagnoses.
Trying not to let it consume my every thought right now so here's a cute video of my dogs walking home in case you are in need of a distraction, too! 😚💛



#chronic #chronicillness #chronicillnesswarrior #autoimmunehepatitis #autoimmune #autoimmunedisease #chronicillnesssupport #spoonie #spooniestrong #spooniesupport #spoonielife  #hemochromatosis #diabetes

My newest healthy eating hack. Homemade baby food! 😂 People — have you looked at how healthy these recipes are?! Ok, many of you probably have, but as someone without kids I’m realizing that this is a whole area of food that I’ve been missing out on.
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It seems I have to add a little seasoning, but I love how there is virtually zero oil. This one here is avocado and steamed zucchini and peas thrown in the food processor. (I added cilantro and salt.) The next one I’m excited to try is sweet potato, banana, and avocado.
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Plus whenever I’m not well I like to give my digestive system a break, so I think this would be a great healing food hack as well.
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Are there any other full blow adults out there eating baby food? I’d seriously love to know!!
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#mecfsrecovery #CFSME #MECSF #CFS #chronicfatiguesyndrome #chronicfatiguesyndromerecovery #chronicfatiguerecovery #chronicfatigue #vegan #healthyrecipes #spoonie

Good Morning World! I just want to say thank you to all my followers. The love and support I have been receiving from my Chronically Ill Community has been utterly amazing. You guys are some of the nicest people I’ve ever come across. Please don’t forget that we are all in this together. We may all suffer from different ailments but we fight the same fight. To be heard, understood, recognized by the medical and “healthy” community. Don’t give up on yourselves or your care. We are our only advocates and if we don’t push medical professionals to help us nothing will get done. Keep pushing forward. Keep being Warriors and fight for the care you deserve. Keep being Amazing! Keep being you!! 💪🏼❤️ I hope everyone has a wonderful day!
#chronicallyill #illness #invisibleillness #chronicillness #pain #suffering #fibromyalgia #fibro #scoliosis #scolio #chronicclustermigraines #endometriosis #endo #posturalorthostatictachycardiasyndrome #pots #spoonie #myofascialpainsyndrome #arthritis #degenerativediscdisease #health #tryingtogetbetter #justwanttobehealthy #standstrong #warriors #wearestrong #dontgiveup

Happy Friday instafolks. Present wrapping finished.....and breath. Now off for a well earned rest. Next year I'm buying small things and chucking them all into gift bags 😂 How's everyone else getting on with their preparations?
#christmaspresentwrapping #preparingforchristmas #jobsfortoday #exhausted #spoonie #mycornishcottage #mycornishhome #autoimmunedisease

Let’s talk about invisible illnesses. Let’s start a dialogue. #fybromyalgia #psoriasis #psoriaticarthritis #ulcerativecolitis #spoonie #chronicillness #chronicpain

I am so grateful to @medicalmedium for sharing my story and for providing the information we all need to heal! 🕊 Check out this video shared over on the #medicalmedium feed today where I talk a little about my journey. I am so honored to inspire and give you all hope for healing! ♥️
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Thank you, Anthony! We are all so blessed to have you provide us with all of the life changing info that you have and that is yet to come! 🙏🏻💗 I am definitely living a life full of purpose and compassion thanks to you & Spirit! 🥰
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#medicalmediumcommunity #medicalmediumlifestyle #mmtribe #medicalmediumtribe #spoonie #ebv #chrons #sibo #colitis #guthealth #medicalmediumprotocol #mmcommunity #liverrescue #epsteinbarrvirus #thyroidhealing #selfhealing #foodismedicine #plantbasedhealing #plantsheal #medicalmediumprotocol #healingwarrior #leakygut #liverrescue369 #autoimmunehealing #lifechangingfoods #gratitude #healing

The best part about winter is that you can go out in pubic with a heating pad strapped to you and no one knows because you're wearing a big coat over it. #fibromyalgia #migraine #chronicpain #chronicillness #spoonie #morningwalk #getoutside

Didn't know what to wear today. Found dinosaur on rollerblades socks so matched my jumper accordingly (dinosaurs on rollerblades and skateboards). Feeling co-ordinated but confused at how 'dinosaurs on rollerblades' appears to be a theme in my wardrobe. .
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[ID Photos of Elion... the first and third are selfies of Elion in a grey jumper and pink pinafore dress. The jumper has dinosaurs on rollerblades on it. Elion has lilacy hair. The second photo is of pink socks with dinosaurs on rollerblades on. Elion is also wearing purple docs. The last photo is a full outfit picture]
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#dinosaurs #dinosaursonrollerblades #rollerblades #socks #jumper #docmartens #docs #ootd #outfitoftheday #eds #heds #ehlersdanlossyndrome #hypermobility #zebra #zebrastrong #hypermobileehlersdanlossyndrome #fatigue #fibro #fibromyalgia #disabled #spoonie #chronicillness #chronicpain #queer #lgbtq #trans #transgender #nonbinary #mentalhealth #ptsd

I would LOVE to be one of those people who go in with one symptom, one problem area but no, like many of us I have multiple symptoms, in spee rate areas of the body but unless they KNOW where exactly ALL the symptoms and problems together then they can’t make a correct diagnosis it’s just such a stupid policy. Like I’d always go in TRYING to explain that my joint aches, muscle pains and fatigue are all connected with generalised pain, but I mention (for example) fatigue and I get stopped before I say anything else and told to have a blood test like JUST LISTEN TO ME! #lungdisease #pulmonary #pulmonaryrehab #pulmonaryrehabilitation #pulmonaryfunctiontest #pulmonarydisease #chronicillness #chronicpain #spoonie #heartdefect #congenitalheartdefect #congenitalheartdisease #mitralvalve #mitralvalvedisease #Chronicfatiguesyndrome #Chronicallyill #Myalgicencephalomyelitis #lowbloodpressure #hypotention #posturalhypotension #spoonielife #butyoudontlooksick #Menorrhagia #Dysmenorrhea #Hypotension #Myalgia #IBS #Dysphagia #cocodamol #tramadol

Top #spoonie posts

First ME, then my disease
POSTING FROM THE HOSPITAL, IRONIC
#savethenhs
I am unfortunately spending National Day of People With Disabilities in the emergency room. Not the kind of celebration I wanted (I planned to have a beer but whatever) So I wish you all that you never have to go through this amount of fear and pain.
I wish myself to fight bravely. . .
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#wheelchair #mobilityaid #mobility #babewithamobilityaid #disabledwomen #disabledartist #disabledpeoplearehot #spoonie #spooniesupport #spoonies #wheelygoodtime #accessible #spoonielife #chronicpain #chronicillness #chronic #disabilityrights #disabilitypride #ableismexists

December 4, 2015 in a post-colonoscopy-sedated state, my doctor came in and sat by my bed. The same place he had sat when he solemnly told me I was being diagnosed with severe Crohn’s just six months earlier. But this time he smiled as he told me I was in clinical remission. Not just improving. Not just making progress. But 100% clear, ZERO signs of any IBD, complete clinical remission.

Damn.

My mom called me today to say congratulations. I was confused at first because I totally forgot but now sitting here typing this out, tears fill my eyes because it’s just so damn cool.

Fours years. Two colonoscopies. Three MRIs. 37 blood tests. 108 Humira injections. 2 moves. 1 wedding. 1 healthy baby. Another one on the way. Zero surgeries. Zero flares. Zero hospitalizations.

I don’t want to take this feeling for granted. I know so few are this fortunate. I just feel so damn lucky. Thanks, mom, for reminding me of that.

It’s so hard to find that balance! I seem to swing between going at 100 miles an hour, or having to spend a week in bed recovering 🤦🏼‍♀️maybe one day I’ll learn..
Art @flow.days
#chronicillness #chronicpain #chronicpainwarrior #chronicfatigue #fatigue #invisibleillness #autoimmunedisease #butyoudontlooksick #spoonie #spooniestrong #spooniesupport #spoonieproblems #mentalhealth #mentalhealthawareness #mentalillness

My doctor told me today that “my body is starting to wake up.” This statement elicited so much emotion; I felt like we finally just may have figured it all out. I felt hope.

For the past year, my body began to shut down on me. Seriously--my doctor said every area of my body essentially slowed down.
Organs and systems stopped working. I had low, barely functioning bodily systems. My brain slowed, my stomach slowed, my colon slowed, my heart slowed, my muscles weakened, my mind weakened; I became a prisoner to my severely low-functioning thyroid.

I made a decision to seek out more answers..I needed to know why all of this was happening. It seemed like every single area of my body was affected-it did not make sense. Not just one organ..not just one system. My research and intuition landed me to see an incredible endocrinologist who merely saved my life within the past two months.Sure enough, the little gland in my throat had caused my body to shut down.

Today I saw her & she noticed how much I have progressed. She even complimented my weight gain (specifically my big cheeks!) My thyroid levels have improved so much due to her protocol & self-healing; everything is waking up. I am waking up--literally. My body has been asleep for far too long. My hormone levels 2 months ago were heartbreakingly, dangerously low; my hormone levels were equivalent to a brick. Nonexistent-I felt dead. lifeless. It is mind-blowing how just targetting my thyroid jumpstarted hormone production, & helped my malabsorption of nutrients. My new labs make me reassured.

It all makes sense now (I hope). I post this today to emphasize the importance of your thyroid gland. If it is not optimal--you cannot be optimal. Plenty of chronically ill patients get misdiagnosed multiple times before finding out their thyroid is causing so much suffering. You would be surprised to know that your hormones/thyroid controls EVERYTHING from your heart to your reproductive system. & please make sure your doctor is testing for a full thyroid&hormone panel..because you need all levels optimal to feel optimal.

Happy thyroid=Happy me 🦋🦋🦋🦋🦋

DISABLED BODIES DESERVE A SPACE IN MEDIA (@wheelchair_rapunzel)
I can be sexy and beautiful with or without my mobility aid.
#DisabiliTease has really pushed me to feel BEAUTIFUL regardless of it and even if I felt I was ok with it, the grief of loosing your body can be traumatic and tremendous and I wouldn’t do any of it without @littlepeachesburlesque and every single beautiful woman who has become so dear to me showing and sharing their strength and unconditional drive to prove twats wrong!
@ariellefirecracker, @dottie__may, @iambeijaflo we’ve now made a coven of blood and wine cos I said so 🍷
There’s going to be A LOT more from me this week, you’re welcome 💕 📸 @barbarossa_photo .
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#wheelchair #mobilityaid #mobility #babewithamobilityaid #disabledwomen #disabledartist #disabledpeoplearehot #spoonie #spooniesupport #spoonies #wheelygoodtime #accessible #spoonielife #chronicpain #chronicillness #chronic #disabilityrights #disabilitypride #ableismexists

Remember that you are not a bad person if you choose to prioritize your own self-care. If you need to cancel plans, change your mind or say no in order to help yourself, you should. Comment below with your thoughts. Please share/tag a friend who needs to read this today.

Follow us @how.u.feeling for more post about living with a chronic or mental illness. Our DMs are always open. Come introduce yourself to us and if you ever need to chat or vent we are always avail. You are not alone in your fight ❤️

Equally disabled, you just can't always see it.
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Today is world day of disability, and like many others with chronic illness and/or disability (it is very possible to have one without the other or both), I want to remind people that you do not always have to be using a visible aid to have a disability.
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The days that I spend walking, I still worry about joint stability, muscle and joint pain, chronic fatigue, dizziness, tachycardia, low blood pressure, and fainting. All of these things contribute to increased awareness and extra need to be careful when I'm moving from place to place. It means, even on my lowest symptom days, I have to plan careful, make sure I have back up plans for if I regress and can't drive, need emergency medical care, or otherwise find myself in a symptom flare.
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My disability looks different every day, every hour, and every minute. I work hard to adjust to it as it changes, and it would make my life ten fold easier if other people could make that adjustment along with me.
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#chronicillness #cfs #chronicfatiguesyndrome #PoTS #pots #orthostatictachycardia #dysautonomia #myalgicencephalomyelitis #ME #spoonie #gastroparesis #migraine #chronicmigraines #choosejoy #tired #grateful  #immunedisorder #selflove #spooniesister #gratitude #hospital #hope #carenotcure #butyoudontlooksick #mobilityaid #babewithamobilityaid #wheelchair #cane #caneuser #wheelchairuser

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